Presentation Information
[P1-12-08]Living with von Hippel-Lindau syndrome (VHL): A qualitative study of family members with VHL
Masako Torishima1,2,3, Manami Matsukawa4,5, Sayoko Haruyama3, Takeshi Nakajima3,6, Ayako Takahashi3,7 (1. Department of Genomic Medicine, Graduate School of Medicine, Kyoto University, 2. VHL Center, Kyoto University Hospital, 3. Clinical Genetics Unit, Kyoto University Hospital, 4. Department of Medical Ethics, Graduate School of Medicine, Kyoto University, 5. Department of Genetic Medicine and Services, National Cancer Center Hospital, 6. Department of Genetic Oncology, Osaka International Cancer Institute, 7. Department of Ophthalmology and Visual Sciences, Graduate School of Medicine, Kyoto University)
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