Presentation Information
[SY-19-02]Strengthening CAre in collaboration
with People with lived Experience of psychosis in Uganda (SCAPE-U)
*Byamah Brian Mutamba1, Muthoni Mathai2, Palmira Fortunata3 (1.1. Butabika Hospital 2. YouBelong Uganda(Uganda), 2.2. University of Nairobi(Kenya), 3.3. National Institute of Health, Ministry of Health(Mozambique))
Keywords:
Integration,Health systems,Public sector,lived experience
Mental health services are most effective and equitable when designed, delivered, and evaluated in
collaboration with people with lived experience of mental illness. Unfortunately, people with lived experience are rarely involved in health systems strengthening, and when they are, it is limited to specific components (e.g., peer helpers) rather than across-the-board collaboration in the continuum of health services.
We are proposing a novel approach for collaboration with people with lived experience of psychosis that includes involvement at the primary care, community, and home settings. By collaborating on health systems strengthening across these multiple levels, we foresee a more in-depth
contribution that can lead to rethinking how best to design and deliver care for people living with psychosis.
We piloted this multi-tiered collaboration with people with lived experience in Uganda because low-income countries represent the greatest gaps in access to evidence-based mental health care.
Using a pilot cluster randomized controlled trial ,we evaluated the feasibility and acceptability of SCAPE-U; which involves training people with lived experience of psychosis using PhotoVoice and other methods to participate at three levels: primary health care, community and home level.
collaboration with people with lived experience of mental illness. Unfortunately, people with lived experience are rarely involved in health systems strengthening, and when they are, it is limited to specific components (e.g., peer helpers) rather than across-the-board collaboration in the continuum of health services.
We are proposing a novel approach for collaboration with people with lived experience of psychosis that includes involvement at the primary care, community, and home settings. By collaborating on health systems strengthening across these multiple levels, we foresee a more in-depth
contribution that can lead to rethinking how best to design and deliver care for people living with psychosis.
We piloted this multi-tiered collaboration with people with lived experience in Uganda because low-income countries represent the greatest gaps in access to evidence-based mental health care.
Using a pilot cluster randomized controlled trial ,we evaluated the feasibility and acceptability of SCAPE-U; which involves training people with lived experience of psychosis using PhotoVoice and other methods to participate at three levels: primary health care, community and home level.