講演情報
[O-15-05]Renaming the high-risk for psychosis' concept in psychiatry. Young people’s perspectives and cultural implications
*Andrea Roberto Polari1 (1. Orygen (Australia))
キーワード:
Early Intervention、Stigma、Diagnosis、Labels
The language used in psychiatry is important because it provides an understandable and accurate way of describing clinical and theoretical concepts. However, the use of labels has often been associated with stigma and reduced engagement with clinical services. The presentation will cover process of generation of new terms for the ‘at-risk mental state’ (ARMS) for psychosis' concept, the perception of what young people, their caregivers and clinicians thought of these new terms as well as terms commonly used in early intervention clinics. Additionally, the presentation will address the participants’ preference related to the best timing to introduce the at-risk concept, the extent and context of the information presented. New terms illustrating the at-risk concept have been generated by a youth reference group with lived experience of mental illness in Melbourne, Australia: ‘pre-diagnosis stage’ (PDS), ’potential of developing a mental illness’ (PDMI) and ’disposition for developing a mental illness’ (DDMI). The preferred terms were PDS, PDMI and ARMS. The least favoured terms were Ultra High Risk and Attenuated Psychotic Syndrome, which were thought to be associated with the most stigma. Most participants agreed that disclosure about diagnosis should be delivered early in care by the key clinician. The presentation will look at the replication of those findings in culturally diverse settings such as Japan and Italy. Results indicate that partnership with people with living and lived experience is possible and that ARMS has good intercultural consistency. Depending on the cultural context patients-generated terms can be used, but may be stigmatizing too and not culturally appropriate. Stigma may be related to terms used, their translation and cultural setting.