講演情報
[PE4-2]Prevalence of Huntington’s disease in South Korea changes by informatics
○Kim Manho1, Lee Jeeyoung2 (1.Seoul National University Hospital, Seoul National University, College of Medicine, Seoul, South Korea, 2.Seoul National University, College of Medicine, Seoul, South Korea)
Background and Purpose: Incidences of Huntington’s disease (HD) in Japan and South Korea are believed to be rare, thus it might be the ethnic difference from those of western countries. However, the data source for these low incidence was limited based on hospital detection rate in South Korea.
Methods: In South Korea, we have provided information tools such as developing Korean HD homepage since 2015 for those who search for the HD information in internet. In addition, BAND (a kind of internet-based interaction methods between patients and family members of HD) has been made. We followed-up the members of HD association every year. Another informatics is health insurance big data analysis, since all the people in South Korea has been covered by one-insurance from government, which enabled us to obtain database. Ten-year (2010-2019) National Insurance Data were collected and determined the prevalence.
Results: Homepage or bands did increased the awareness of HD and increase the members almost doubling every year. Insurance database revealed average (N= 152.10) numbers also in every year.
Prevalence rate is 2.22, which is higher than those of Asian countries (0.40; CI: 0.26-0.61), and half of the pooled prevalence of 5.70 (CI: 4.42-7.35) among North America and Europe.
Conclusion: These informatics updated the concept of low HD prevalence rate in South Korea. Further inclusion of those with unawareness of HD will show higher prevalence rate.
Methods: In South Korea, we have provided information tools such as developing Korean HD homepage since 2015 for those who search for the HD information in internet. In addition, BAND (a kind of internet-based interaction methods between patients and family members of HD) has been made. We followed-up the members of HD association every year. Another informatics is health insurance big data analysis, since all the people in South Korea has been covered by one-insurance from government, which enabled us to obtain database. Ten-year (2010-2019) National Insurance Data were collected and determined the prevalence.
Results: Homepage or bands did increased the awareness of HD and increase the members almost doubling every year. Insurance database revealed average (N= 152.10) numbers also in every year.
Prevalence rate is 2.22, which is higher than those of Asian countries (0.40; CI: 0.26-0.61), and half of the pooled prevalence of 5.70 (CI: 4.42-7.35) among North America and Europe.
Conclusion: These informatics updated the concept of low HD prevalence rate in South Korea. Further inclusion of those with unawareness of HD will show higher prevalence rate.